Mastocytosis is over accumulation of mast cells in the body that degranulate and cause anaphylactic reactions with no reason what so ever you just react and sometimes triggers can be figured out ,other times no trigger is found. There is NO CURE it has taken me away already. I married the love of my life and we have 5 children, youngest is 8 this was all prior to my diagnosis . Zabrina has seen her mother being taken by ambulance, more than once and this is something I never wanted her to ever see. I wake up feeling like I am choking and can't breathe, arms burning and feeling like I'm going to pass out, extreme abdominal pain and the depression that comes with this is out of my control. I cry all the time and sometimes it doesn't stop until I fall asleep. I just wish I could find out why this just shows up out of nowhere ?

It seems that the New England area has a high concentration of people who have mastosytosis. Why is that? Many children get this disease some outgrow it and some do not and It breaks my heart to see all the pages with "In Memory of" with that babies name. I have cried every day since I was told I have this disease, I write goodbye letters to my children in the event that one of these attacks takes my life or that this disease decides to become aggressive when it feels the need. I can no longer be the mother, wife and friend that I once was ..I can no longer barely breathe without tons of medication and going to sleep in fear of what I will awake too..another ambulance trip or epi pen for breakfast? I can't believe there is no cure for this and if I won the lottery today, I would put every cent up to the first person that cured it...and that is the truth..I wish that anyone could see how far I would go to fix this and make it better for everyone that has it...